Shining a Light on Familial Hypercholesterolemia: ABC Promotes Awareness During National Sudden Cardiac Arrest Awareness Month

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WASHINGTON, Oct. 31, 2024 ~ The Association of Black Cardiologists (ABC) is taking a stand against heart health disparities by shining a spotlight on Familial Hypercholesterolemia (FH) during National Sudden Cardiac Arrest Awareness Month. This inherited genetic disorder causes severely elevated levels of LDL-cholesterol, putting individuals at a higher risk for heart disease, heart attacks, and even sudden cardiac arrest (SCA). The ABC's campaign, "Family Heartbeats Unmasked," aims to raise awareness about the importance of early detection and proactive management of FH by sharing personal stories from those affected by the condition.

FH is often referred to as a silent threat because it typically does not present any symptoms until a person experiences a heart attack. The elevated cholesterol levels caused by FH can lead to atherosclerosis, or hardening of the arteries, which can result in complications at a young age. Atherosclerotic plaques can also rupture and cause SCA. Through their campaign, the ABC hopes to educate the public about the serious risks associated with untreated high cholesterol due to FH. With early detection and proper treatment, individuals with chronic conditions like FH can significantly reduce their risk of life-threatening cardiac events.

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Dr. Ijeoma Isiadinso, co-chair of the ABC Preventive Cardiology Committee and Medical Director of the Preventive Cardiology Program at Emory Heart & Vascular in Atlanta, emphasizes the importance of sharing patient stories to help families affected by FH better understand the condition and take action to prevent tragic outcomes. "I am deeply committed to ensuring that our communities understand FH's risks and take early action to protect their heart health," said Dr. Isiadinso. "The intersection of my work with ABC and Emory allows us collectively to increase awareness of FH and make a larger impact on communities at risk."

The "Family Heartbeats Unmasked" campaign specifically focuses on highlighting the impact of FH on families, particularly in Black American and other minority communities where the condition is often underdiagnosed. The campaign includes educational videos, public service announcements led by physicians, and various resources to improve FH awareness, screening, and treatment.

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Dr. Carissa Baker-Smith, co-chair of the ABC Preventive Cardiology Committee and Director of the Preventive Cardiology program at Nemours Children's Hospital in Delaware, also stresses the importance of early screening for FH, starting in childhood. "It is important that families understand the importance of screening for FH," said Dr. Baker-Smith. "In my roles at both ABC and Nemours Children's Hospital, I'm honored to help connect the resources of these two organizations to bring awareness and education to those who need it most."

The ABC has partnered with Emory University in Atlanta, Georgia and Nemours Children's Hospital in Delaware to create this campaign. By collaborating with these institutions, the ABC hopes to reach a wider audience and make a greater impact on communities at risk.

For more information about FH and the "Family Heartbeats Unmasked" campaign, visit abcardio.org. Early detection and proactive management are key in preventing devastating outcomes from this silent threat. The ABC is dedicated to raising awareness about FH and ensuring that individuals and families have access to life-saving treatments.
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